Week beginning Sunday 2/2/13-Friday 1/3/2013
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| Richard Thompson :annual event |
Managed to get to see Richard Thompson at the corn exchange
albeit I nodded off briefly
Side effects
From Radiotherapy:
i)
Hair loss: As predicted, the side effects from
the Radiotherapy begin to emerge. These appear to build /cumulative and I have
noticed hair loss whilst in the
shower each day this week .Subsequently, I went to the barber (Stewart –many
thanks) who was very good at navigating around the biopsy scar (which is
slightly red due to the radiation) whilst trying to make me something of the
limited hair.
ii)
Somnolence :
As Expected. I find I can nod off in the most unlikely of
places (I even went off at a rock gig at the corn exchange: Tiredness –
exhaustion is further complicated as the Steroids have multiple side effects
(see below) which affect sleep pattern etc. However this is manageable if I
have space to meditate and rest, eat as needed.
From Steroids
i)
Early Morning Waking and need (urgency) in
needing to pee: I get off to sleep without problem however I usually wake in
the early hours & remain awake before
aiming to return to bed (by which time my body temperature has reduced
to corpse level, which Anne finds unnerving. I quickly warm and ready for our
usual get up time and her morning tea.
ii)
Oedema (swelling due to build up of fluid) "Moonface" Ankles +++, knees, legs, neck++ face+++.This is not painful as such however I
am experiencing aching knees?.I elevate the legs to manage
iii)
Dry itchy skin. Caused by the skin being
stretched due to oedema.GP has given me a prescription for ‘double base’ which
helps
GP visit: frank discussion with GP about prognosis and
symptoms. Found this helpful and I feel we now have a open understanding.
Option of diuretics, however I am
resistant as all drugs have negative side
effects. Need to consider treatment options?? Temodar?
Felix Cooking: Showed Felix how to cook a steak (this was
left over from Joseph’s 22nd birthday last Thursday. I think he has
now got it!
Visit to in-laws
Good to visit with Rory & Felix, Mary & Jim, whom
has clearly made a good recovery from the worst of his combined medical
problems. Always nice to do a malt tasting,’ Tullimore dew’ though it set of
the somnolence.
Elsa & Nick visit ; Anne & I wanted to show our
appreciation for the help that Elsa Nick
have generously given so we brought them a picture of Hunstanton
Wednesday 19:30hrs.
Open session at the Devonshire with : Raymond T, Paul
M, Paul R, Alun M, yours truly. Very enjoyable evening
Paperwork/Finance Anne & I have managed to put
off (avoid?) looking at paperwork, finances, car, future ,wills ,etc etc,
therefore for the latter part of the week we have decided to give ourselves
some space to address this. Probably need independent financial advice.
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